Determining up-to-date disease burden of 12 selected rare central nervous system tumors

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  • A partnership between the Central Brain Tumor Registry of the United States (CBTRUS) and the National Cancer Institute’s Comprehensive Oncology Network Evaluating Rare CNS Tumors (NCI-CONNECT) yielded incidence and prevalence, as well as survival data, for rare brain and other central nervous system (CNS) tumors that had not previously been reported, which will provide a statistical basis for understanding and studying these tumors.

Why this matters

  • Understanding tumor-specific incidence, prevalence, and survival of rare primary brain and other CNS tumors is critical for evaluating the individual contribution of each tumor type to overall cancer burden.

  • These data can also be used as a statistical foundation in future clinical trials.

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